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The proxy problem anatomized: Child-parent disagreement in Health Related Quality of Life reports of chronically ill adolescents

Publication of Innovations in Care
A.L. Staa,van, J.N.T. Sattoe, | Article | Publication date: 25 January 2012
Discrepancy between self-reports and parent-proxy reports of adolescent health-related quality of life (HRQoL) has been repeatedly acknowledged in the literature as the proxy problem. However, little is known about the extent and direction of this discrepancy. The purpose of this study is to explore to what extent and in what direction HRQoL self-reports of adolescents with chronic conditions and those of their parents differ.

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